Data Protection & Security
If you have questions or concerns about data protection please be in contact FinnGen Data Protection Officer:
email dpo-finngen@helsinki.fi
phone: +358 2941 40093
If you suspect a data breach, report immediately:
Online reporting form (link also in the members’ area)
Or contacting directly our DPO
If you lose your @finngen.fi-credentials, or suspect that they have been compromised, please immediately contact finngen-servicedesk@helsinki.fi.
Also, to access the data in the Sandbox, you are required to take a data security exam once a year. This is to make sure the data related to the study subjects is not mishandled. In the following videos, a researcher called Individual Jones will guide you through the basic structure of the Sandbox, the data content and how data security is handled. You’ll then be ready to take the exam!
Video 1: FinnGen is a research project (3.31 min)
The aims of the FinnGen research project
FinnGen genotype and phenotype data basic
Video 2: Data structure and access levels (5.18 min)
Where to find the data in the Sandbox
How to download results from the Sandbox
How to share your data and results with other organizations
Video 3: Basics of personal data and individual level data (6.21 min)
What is personal data and individual level data
How and why data is pseudonymised
When data is anonymised
How the Sandbox and data is protected
How you can protect the data
The different types of FinnGen analysis and processes related to them
Part 4: Why it is safe to do analysis in the Sandbox (5.14 min)
How the Sandbox and data is protected
How you can protect the data
The different types of FinnGen analysis and processes related to them
Last updated