What is a FinnGen bespoke analysis proposal and when do I need to submit one?

All research done in FinnGen must adhere to the FinnGen Scientific Plan and its amendments as use of FinnGen data is allowed only for research established in its Scientific Plan.

All analyses done using FinnGen data must have a specific articulated scientific purpose, and the potential to produce publishable results.

Before submitting the FinnGen bespoke analysis

Please familiarize yourself with both the FinnGen Scientific Plan and its amendments, as well as FinnGen bespoke analysis protocol before you consider submitting FinnGen bespoke analysis proposal.

What is a FinnGen bespoke analyses and when is it used

FinnGen bespoke analyses are analyses where one or many FinnGen Partners want to conduct analyses using FinnGen data, but wishes not to share the analysis idea and results to all the other FinnGen Partners. FinnGen encourages open collaboration and bespoke analysis to be used only in situations where the results cannot be shared with other FinnGen Partners. Thus far, FinnGen has only a handful of ongoing bespoke analyses.

Data controllers

Compared to FinnGen analysis proposals there is also another difference which is related to the data controller. In the case of FinnGen analysis proposals the data controller is the University of Helsinki. This means that the University of Helsinki determines the purpose and means to use the data. In FinnGen bespoke analysis the data controllers are your organization and University of Helsinki jointly. In FinnGen bespoke analysis the joint controllers together determine the purpose and means to use the data.