What is the difference between FinnGen analysis proposals and FinnGen bespoke analyses?

There are two main differences between FinnGen analysis and FinnGen bespoke analyses.

Breadth of result sharing

The first difference regards the breadth of results sharing. In the case of FinnGen analyses the results should be shared with all FinnGen Partners, whereas in the case of FinnGen bespoke analyses, the individual level results need to be shared only with the University of Helsinki and your organization. However, the final results of bespoke analyses shall be published as well.

Data controller

The second difference is the data controller. In the case of FinnGen analysis the data controller is the University of Helsinki. The University of Helsinki determines the purpose and means to use the data. FinnGen bespoke analysis requires a joint controller agreement to be drafted, agreed and signed between the University of Helsinki and your organization. In FinnGen bespoke analysis the joint controllers together determine the purpose and means to use the data.

In both cases all analyses done using FinnGen data need to also have articulated scientific purpose and potential to produce publishable results.

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